Patient & Community Engagement
Join Our Search for New Lupus Treatments
We’re on a mission to change the future of lupus clinical research, and we need your help! Your involvement could lead to more therapy options that better address the unique ways that lupus can affect people like you. No matter where you are on your journey, you can help us find the next big breakthrough. Every voice matters and can make a difference in improving the research process.
How You Can Help Advance Clinical Research
Clinical Trials
We can connect you directly to our biopharmaceutical partners’ clinical trials. Your voice will help researchers develop new therapeutic options that are safe, effective, and accessible to all people with lupus.
Patient Advisory Boards (PABs)
By participating in a virtual or in-person PAB, you can provide valuable feedback on clinical trial design and communications to ensure people with lupus benefit from new treatments.
Patient Protocol Review Council
Those who participate in the Patient Protocol Review Council help our partners develop and update their clinical research trial designs and materials to be inclusive and acceptable to people with lupus.
Peer-to-Peer Education
Patient Advocates for Lupus Studies (PALS) is the first-ever peer-to-peer clinical trial education program. The PALS program aims to increase awareness, participation, and diversity in lupus clinical trials.
Community Based Health Equity Initiatives
We’re spearheading several community-based initiatives to improve access to clinical trials, increase participation rates among diverse communities, and improve health equity for people with lupus.